For the privacy of the family I will not be mentioning any names. This beautiful family has three children. They were completely shocked and in a bit of denial when they found out they were pregnant with their fourth child. From the beginning, she felt like something just wasn’t right. You know, that mommy instinct. Fast forward to the infamous 20 week ultrasound. Baby #4, AKA “Little Hero” has Cornelia De Lange Syndrome along with a large diaphragmatic hernia and abnormal heart/lung development. The testing all came back “abnormal” and “not compatible with life”. She was not expected to go past 28 weeks.
She went into labor at 39 weeks. March 4, 2015 at 3:45am, sweet Baby H was born. She gave us all a little tiny cry and made the cutest sounds. She had a ton of beautiful hair. She had the tiniest, cutest features. She was absolutely adorable! She made a huge impact on everyone that got to meet her in her short one hour of life. She did more for us in that hour than most people do for us in years. She was a miracle. I will never forget the very emotional and private time I was able to spend with this family.