This is beautiful…please take the time to read this letter to Sarah. Sarah is kind of a big thing. smile emoticon Love you Sarah and family!!
To our sweetest Sarah,
This is, in fact, one of the hardest letters that we’ve had to write in our lives. Nevertheless, we need to have the peace in our hearts that we can continue to be your rocks while you’ve been our hearts for these many years. You are about to triumph one of the hardest obstacles in your short life. We are scared, worried and sad that our girl has to go through this and that we can’t take your place. Please know that we would without hesitation.
When Mommy met you in the Pediatric ICU, she melted. There were so many complicated affairs in your life not to mention the seemingly insurmountable list of medical diagnoses and events in your life. Through it all though, you came out of them. A little battered, a bit bruised but nonetheless, you were the winner in your game of life. How could we say no to you? How could we not want to give you the family that you deserved? How?
We were so happy on your adoption day. You were our daughter and more importantly, we had you. We were a family. There are so many that say that you are blessed to have us in your life. Not true at all. We are blessed to have you as our daughter.
In your short eleven years of life, you’ve been hospitalized already 40 times. These hospitalizations include your two heart infections, countless bacterial infections throughout your body, your brain bleed at six months of age, heart procedures and a transfer or four in an ambulance or helicopter. We are constantly amazed at your will and want for more- more time with your best bud, Daddy, more time with your puppies to snuggle and more time to share your story with anyone that will listen.
We’ve attended the care conferences of specialists saying that they can offer no more and that they need you to seek care at another institution to give you the best. And we do, we fly to Philadelphia almost every year for the “wizards” to help our girl. They have and they will continue to give us more time and more love from you.
Soon, we will board that plane once again. This time for your third open heart surgery. The one. The one that we’ve heard about in fairy tales. The one that will give you a bigger and better heart valve. One that will help you grow and gain back the weight that you’ve lost so quickly in the past six months. By all views, this should be great. This, though, will be your biggest obstacle yet, we fear.
The heart surgeons will need to reconstruct your heart from the outside in. They will need to transplant your heart arteries and build a base for your new valve. Your largest piece of plumbing will need to be replaced with new. All while your heart stands still in your sweet chest. This will be hard. Your heart surgeon has practiced for decades and has admitted that this will be one of the most difficult in his career. He’ll be successful. The road to your recovery could be weeks to months while in Philadelphia. We’ll be there. We’ll always be there.
Now take the time to be amazed at yourself. Initially, we were told that we were bringing you home as a hospice foster baby. You celebrated your eleventh birthday this year. We struggle for years to get you the physical and occupational therapies. You started walking when you were five. Goals have been written to work towards a goal of you understanding one step directions. You now clean your spot at the dinner table. Take this amazement and wonder of your sweet self and be awesome in Philly.
We love you sweet Sarah. May you never stop encouraging others to be amazing.
Daddy and Mommy